Reply To: Looking for answers- doctors making me feel like I am crazy

Anonymous
August 18, 2012 at 2:52 am

If you live near a teaching hospital I would recommend you start there. Most doc’s are not trained in rare illnesses our’s: CIDP and all the variants etc., will leave them scratching there heads. Teaching hospitals have doc’s who not only scratch their heads, but they dig in to find the causes, treatment options etc. And, your illness will be approached by a team of very smart people.

If y0u’re not near a teaching hospital then, I recommend a neurologist with not only an MD but also a PHD under their belt. Look for the smartest docs for all your care. After, diagnosis we with rare diseases usually end up with between 8-10 docs treating all the symptoms of our “weird” diseases.

Wishing you the very best,

Dianna H.