Reply To: Joint Pains

April 26, 2012 at 11:55 am

I am so glad you had a good response to your treatment- it is a long day- I can only go to 60 ccs/ hour. Luckily my infusion center is only 20 minutes drive . My reflexes are pretty normal now – the only time I lost them is when I was first hospitalized/ diagnosed with GBS at this point I was essentially paralyzed from chest down could not move legs and could not walk- since then have never gotten that weak again ( have been treated for relapses) and have not lost reflexes again. My neurologist jokes that my reflexes are mocking him. In terms of skin I do get weird rashes from time to time. Don’t forget your skin is your largest immune organ and people with autoimmune disease get all sorts of weird rashes . Add to that the meds which can cause rashes- I get something called solar urticaria which is like hives from the sun . I feel like living with autoimmune disease including CIDP is like a the line from Forest Gump- its like a box of chocolates- you never know what your are going to get! Hope your good days keep coming.