Reply To: IVIG/treatment and symptoms

Thank you so very much! I don’t even know how you do this with it being your child that has this.. I think that would be so much harder than myself being affected.. My heart goes out to you!…. I feel like I have so much more anxiety/worry since I have had kids.. I just have this overwhelming need/desire to be here for them, to teach them, and for my own satisfaction watch them grow up etc.. when my IUD perforated and I was really sick (I knew something was wrong, but kept on about my life for a week while I bled internally- ugh I feel like an idiot now looking back).. All I could think about was being here for my kids.. Even though I have had THREE emg’s- none which showed any signs of ALS.. I just know my symptoms are so atypical for everything else (tongue twitching, muscle wasting etc etc etc), I just fear that something has been missed.. though after almost 12 neurologists and 3 emgs I shouldn’tn feel that way.. like I said I think it’s PTSD!
My heart also goes out to you having to see an oncologist.. I don’t want to pry, but I hope everything is ok.. and that you won’t need to be seeing an oncologist at all EVER again!!!
I have PHCS/group resources insurance.. not impressed with it.. my insurance isn’t very good thus has resulted in us paying A LOT of medical bills, hence more need for me to be the bread winner! But I am defintely going to check with them about the home health.. and about your company yall use too! Ugh to win the lotto and find a cure for all neurologic and other diseases!!! Thank you again so much for your time!