Reply To: IVIG/treatment and symptoms

February 27, 2012 at 8:59 pm

Thanks for your response!! I actually am not sure how many grams I got for my load dose.. at the time I didn’t know enough about it all to ask, or retain it if they did tell me! It was all a new and foreign concept. . I weigh 125lbs. and my first maintence dose was almost 5 weeks after my loading dose (it was supposed to be 3 weeks, but there was a mix up, so it was 4+ weeks).. then it’s been every three weeks since then.. I got 30G the first two maintence doses (that first one felt AMAZING), 2nd one nothing, then we bumped it up to 48G this last time (again three weeks increment) my neuro said I could go in early for this last one, but the way my work and family schedule was I had taken off the time already for the 3 week schedule and just couldn’t change it.. I’m the breadwinner in my family.. no stress 🙂 Have you ever heard of it working SOOOOO well at first and then this quickly not being as effective?