Reply To: IVIG Treatment

July 13, 2013 at 5:02 pm

Every medication comes with a long list of side effects, including some which are not established but only very loosely associated. This is done out of an abundance of caution and for legal reasons. Most people who receive IvIg do not have serious side effects. I had none at all. Some of the side effects which people have reported here can be lessened by reducing the infusion rate, or by other means. You might find some discussion of this by looking back through the forum.

As for side effects being worse than the disease, that is not likely, but depends on the particular case. For an extremely mild case of CIDP, perhaps, but a severe case of CIDP can be seriously debilitating, indeed. Mine put me in the hospital for four months, much of that in paralysis, and with other side effects that were worse than the disease itself. CIDP is nothing to take lightly. Get the best treatment you can.

And by the way, earlier treatment generally leads to better recovery.