Reply To: IVIG Treatment
GET THE IVIG TREATMENT ASAP!
It took many visits to six neurologists over three years before almost by luck I was tested by one who knew about CIDP and its symptoms. Up to that point I had been told for example “to take a holiday” or don’t worry “some people are just like that”. Even now as a CIDP patient I am told “my (test result) symptoms are mild” and certainly many others are far worse off than I. But in mid-2013 I have developed new unsettling breathing problems to add to earlier issues that crept up on me over about five years: I myself do not see the symptoms as mild as they now seriously impact my daily living!
I have recently started a second six month round of IVIG and will track the results on my own website CIDPlog.com