Reply To: IVIG Success Rates

July 10, 2013 at 4:28 pm

IvIg helps most people with CIDP, but your initial hopes were not realistic. There is a lot of variation with CIDP and the treatment regimen which works best for one person will not necessarily work best for another. Some patients get regulat maintenance treatments of IvIg, others do not.

In my own case, when I was diagnosed with GBS (later changed to CIDP), I was given a five-day loading dose of IvIg. Improvement was temporary. I started to get weaker in a few days so went back to hospital for another five-day reloading dose. This stabilized me for a short time, but then I continued to weaken and went back to the hospital for a third time. My treatment was switched to plasma exchange. I have had no IvIg since. So while it is the treatment of choice for some, it is not equally effective for all.