Reply To: IVIG frequency ?

Hello WTF,

It is not uncommon for the IVIg dose and frequency to need adjusting. You don’t say what the doses are. Perhaps you need more a larger dose than typical to show a response. If you and your insurance can afford it, it would be reasonable to try 2 g/kg every two or three weeks for three or four months before deciding IVIg does not work. Emily, a very young girl when she came down with an unusual presentation of CIDP, needed very large doses very often to stop and then reverse her symptoms. It was an unusual regimen, but it worked for her.

Godspeed in finding a treatment that is effective for you,
MarkEns