Reply To: IVIG dosage

I get 48g every 2 weeks (I weigh 130lbs).. unfortunately it takes me around 9 or 10 hours..at an infusion center- long day! If I go above 80 I get aspectic meningitis.. in fact even at 80 this last time I got a mild case (the headache, fever, chills spine pain – ouch)! I was getting weak after the infusions.. I even felt like my muscles were all vibrating when I was getting it every 3 weeks. I was noticing it “wearing off” or having “relapses”/extreme (lidocaine like) numbness, tingling and weakness hitting various parts of my body around 10-14 days after the infusions.. I have had 2 now that were closer together (one 12 days the other 14).. and notice a DRAMATIC improvement in everything… I also have good and bad days.. though this past month with having the ivig closer together have been pretty consistent.. though if I overdo it my muscles are S O R E! Good luck, hope that does the trick for you!