Reply To: Inquiry
Dear Candr,
My son was 9 when he got CIDP he is 15 now. How long have you had cidp? How often are your treatments? Do you get them in your dorm room? From the begining we have tried to instill a positive attitude in my son. 98% of the time he is positive, the other two percent is attributed to reactions after treatment. If your doc gets you on the proper treatment plan and you stabilize, you should be able to start working out again. We have the relapsing remitting type so our response to ivig was great. Honestly though, 50 miles a week might be tough within the first couple of years. My son has regained all of his stregnth and then some. He works out every day with weights, runs 5k and swims. He wants to be an Army Ranger and is trying to ready himself. We know he will have to be in remission to qualify, but he is hopeful and I am praying (for remission, not necessarily his career choice, but I will support him) Anyway, you get the picture, your goals are attainable through hard work and patience. It takes time to heal but it is possible. We were paralyzed and now he is stronger than the average kid!! Good luck and keep up the good attitude. Keep us posted!
Dawn Kevies mom