Reply To: I don't understand -Help

February 7, 2012 at 7:51 pm


Thanks for your comments, I really appreciate them. My husband and I have talked quite a bit about this diagnosis and wonder if we want to disagree because we don’t want to hear such bad news, or because our instincts are telling us that it might not be accurate. Case in point: last week my mom was in a great deal of pain and could barely move her arms and legs. When I saw her yesterday, however, she was able to move her arms much more freely and had much less pain. I’ve asked the neurologists a couple of times whether it is too early to make such a diagnosis, and they feel that because my mom hasn’t responded to either of the IVIG treatments, she won’t improve. I’m considering asking for a second opinion.

Do you know if there is a local chapter located in the Portland, Oregon metro area? It would be enormously helpful to be able to meet other people in our area. Thanks again.