Reply To: How many of us work?

November 1, 2013 at 12:43 am

I have had CIDP since 1996. A one time shortly after being diagnosed and doing IVIG treatments I couldn’t walk and couldn’t stand on my own. I did spend 3.5 weeks in the hospital being discharged using a wheel chair and walker. Slowly with steroids, physical therapy, and a great pair of AFO’s I started walking again. It took me a few months but I did it. I did go back to work about 4 months later- thank god I work for a caring company- work for a company that cares for the MR/DD. Anyways I still have trouble with my balance (I look like Im drunk at times esp when its dark where im walking ), I still don’t have reflexes in my legs, and I do get tired very easily. Im lucky in the last 10 years Ive been a area coordinator in my company I do a lot of paper/computer work, drive to different locations and use my brain rather than my physical strengths. I do have problems with the numbness in my hands and feet everyday. Sometimes I get very tired and wonder how long I can do this. I don’t look like I have a disability but I do. Ill keep going as long as I can. I wonder what the future holds for me?? I just take it one day at a time. All you are in my thoughts and prayers!

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