Reply To: Hip Weakness/awkwardness anyone?
Yes I have hip flexor weakness- one of my most prominent symptoms and fluctuates when my disease is more active- this type of proximal muscle weakness is common with cidp. I also have what they call distal weakness in terms of some foot drop when I get very weak. My hip flexor weakness is almost like a barometer for me and a big part of how I judge how I am doing. Unfortunately this is one of the most important muscle groups for walking so even mild weakness in hips can make walking very difficult . Glad you are feeling better after IVIG- how are you doing with side effects? have you found an infusion rate or pre meds that work for you?