Reply To: Hip Weakness/awkwardness anyone?

March 16, 2012 at 12:15 pm

Thank you for asking I am doing ok – no major relapse in about one year ( a record for me) – I think due to the combo of imuran and IVIG – i am still getting 20 grams every 10 days. I cannot go above 60 ccs per hour myself – I do get that chest pain and shortness of breath if I go higher even just 65-70 is worse for me- My headache is usually gone by the next day with the lower rate. Luckily because I am small I only get 20 grams so usually done in about 3.5-4 hours. I am trying to increase my physical activity to see how far I can go as I have been inspired by Mitch’s recent updates. I have been trying to walk about 1/2 hour every day – I have been having some more cramping but unless I actually get weaker I will try to push through. I know for me I had a lot of atrophy of leg muscles and could not reverse that until I stopped the cycle of relapses so I am very glad you are on a regular schedule now- wishing you continued healing!