Reply To: Hip Weakness/awkwardness anyone?

March 15, 2012 at 1:53 pm

thanks shellbones! It’s nice to know i’m not alone!!! It was initially my hip flexors, and then with this last relapse, it hit my hip extensors hard too- so I could walk very awkwardly and then my buttocks would tucker out!! haha.. hopefully they won’t waste away completely!!
I’m doing pretty good with the IVIG side effects- I was getting chest pain pretty badly during infusions, even at a low rate of 75! But, the last two infusions I have been able to get to 100 for a while – and just develop a headache after going at 100 a while, so 90 seems to work pretty well (i’m so impatient, i wish i could go faster!).. i keep a headache for a few days and just feel icky/run down for two or so days, maybe a low grade fever. I think keeping the rate down is the key for me.. How are you doing?