Reply To: Help-Considering Stem Cell Transplant

January 11, 2013 at 11:15 pm

I have applied for the sct and am currently waiting to see if I’ve been accepted. It said on the clinical trial page that you have to have failed two other treatments.  I don’t know how that works if you are currently doing a treatment that is working???   You can always just apply and see.

as for others your age….. there are some younger people on here around your age—hopefully they will respond.  It has not been a very active site lately.

There are also some cidp pages on face book, they might have some people your age.  There is a face book page cidp-sct where there is a lot of sct discussion you may find interesting.

Best of luck to you, sorry you had to end up with this crappy disease at such a young age.  I get  upset at getting it in my 40’s, can’t imagine being younger and it taking more time from my life.   On the good note, you are very young and your nerves have greater capacity to heal.        Lori