Reply To: Hello, I'm new here and looking for a little help
I used to post a few years ago and came back to see if any of my exp can help.
You seem to have had all the relevant testing and seem on the right track – tho I am not a specialist – just self taught over time. It took me ten years to get the correct diagnosis of CIDP and that was due to an acute exacerbation over six weeks when I went from a little weak to barely walking. It is true that the symptoms are usually symmetrical and ascending – for me they appeared to be descending and my spinal tap was inconclusive. My diagnosis was confirmed by a sural nerve biopsy. I did steroids. IVIG, pheresis and other immunosupressants over ten years and appear to be in remission for the last two.
Hang in there and good luck with the IVIG