Reply To: Has it really been 14 years?

September 23, 2013 at 4:35 pm

Fifty-nine here, a year and a half in.

I can easily understand how you feel, Matt. Especially about the fatigue, as I have it, too. Still, your story broke my heart. Have to agree with you that you are undeniably depressed. That is just my unprofessional opinion, of course. It sucks that help is no longer available to you.

Have to agree with Dellparr, you have a great way of expressing yourself. That may be the gift that you can offer others. It is so hard for GBSers to explain the condition, its residual effects and associated emotional havoc to those who have never had it. Also, GBS is relatively rare, so patients and their freinds/families have few reliable information resources. I’m not referring strictly to medical jargon, but mainly to the down and gritty of this nasty disorder by someone who’s been there, done that.

The nice thing about writing (I was a writer before GBS) is that you can do it for a few minutes at a time, as you feel up to it. My eyes (and brain) were affected, so I can’t always use the computer or read but if I’m kind to myself and don’t overdo it, I can write a bit at a time.

Sharing your story could also be very cathartic for you, perhaps help to lift some of the burden you’ve carrying around.

Something to think about, anyway. Very best of luck to you, Matt!