Reply To: Gracie-4 years old

Thank you for your response, Dee—I have a question–since your son was only 19 months old and could not obviously tell you if he was hurting, how do you know if your child is in pain or not with this? If I ask my daughter if her toenails hurt she will say yes, because she doesn’t understand. Did they give him anything for pain? Yes–she had two IVIG treatments last week. I just don’t really know how to estimate how long she should still be unable to sit up or get up off the floor on her own. I have been reading on here that if it goes on for longer than 8 weeks it could be CIDP! AAAAAGGGGHHHH!