Reply To: Get Tested!

February 17, 2013 at 8:25 pm

You are missing the point: CIDP is not an illness, don’t believe me, then ask your doctor what causes it. The fact is they don’t know and cannot give you a definitive answer (oh yes, the “your immune system is attacking your nervous system but we don’t know why” answer is out there). Without treating the bartonella than CIDP will not go into remission. Steroids will lower your immune system and only make it worse. I could sit here and debate with you the point, the simple fact is, if you are comfortable with your treatment and the progression of your disease than stick with your plan. However if you are frustrated with a lack of progress within your body and lack of answers from the doctors who treat you, then you owe it to yourself to rule it out. BTW I should have mentioned, the ONLY lab that can effectively test for bartonella is Galaxy labs: Any other lab is a waste of your time and money. (I do not work for any lab or medical office, I am merely a parent trying to spread the word).

Good luck to you, I hope everything works out for you GH.