Reply To: GBS/CIDP Survey

April 6, 2012 at 9:31 pm

Here, Here!!

What is an expert anyway? Surely we are as much experts in this field as the docs/consultants as we know how it affects us! Also the way the consultants in the UK (I do use plural for I have seen more than two) discuss this, is they really don’t know what treatments works for which patients so they really state it is a toss up between three or four different ones (starting with IVIG or Steroids). I can’t comment for the US. This is why it annoys me greatly when people say that everything is known about this disease (or set of diseases) – it certainly ain’t from where I sit – or stand when I can 🙂