Reply To: GBS/CIDP Survey

April 6, 2012 at 3:14 am

You are doing good work and there is value. Don’t stop!

From the “Experts”

-Affects 1-2 per 100% (100% margin of error)
-Recovery lasts 6-12 months….but as long as three years (vague)
-your at greater risk if you are ” a young adult or older adult”-Mayo Clinnic (completely useless)
-70% full recovery (no definition)
-Poor prognostic factors over 40,preceding Diarrheal illness,vent support, poor upper limb strength

Physical Therapy:

-“Thats a 2
-“That a 3,4 or 5”
-“how would you rate your pain”…..completely subjective

I don’t want to be negative about the medical profession because most of the folks who are dialed in to GBS are very knowlegable. But I have to say there is a lot of crap out there if the best you can give me is…”affects young adults and older adults”

I’ll validate yourn survey if it help you or anyone else get more facts. It’s not a waste of time an I applaund your for your efforts.

Good healing my friend.