Reply To: GBS pain

Hello Cathebt, I had AMSAN variant GBS in April 2010 and still have the symptoms you mention. I also take 3.6g Gabapentin, 75 mg lamotrigine, 40 mg oxycontin and 37.5 ug/hr fentanyl patches. I have had my medications gradually altered by the pain consultants every few months, but I still suffer terrible pain and fatigue. I was initially told that it would get better, but as time has progressed, the neurologists become more vague in their expectations. Any honest pain consultant will tell you that this type of pain can be notoriously difficult to treat sometimes….I really do sympathise and hope your symptoms resolve soon.