Reply To: GBS pain

I am also in my 4th month post GBS dx. I was alot like you in the hospital 1 week I too have had IVIG twice once in the hospital and then about a month after being released. I was just released from PT/OT I was going 3 times a week. I still walk with a cane. I am in pain all the time. Buzzing tingling over sensitive and then total numbness. Scarey for me is that it feels like it is getting worse. Now it has moved to my head and face. My vision is blurry and my face feels heavy. I take 1500mg of gabapentine. and 35 mg of predinosone each day. But my pain hasnt improved and they keep upping my gabapentine…I keep calling the doc and he keeps adjusting my meds.