Reply To: GBS but not typical onset

January 28, 2013 at 6:27 am

Your onset sounds very similar to my husband.  He went downhill for about 6 months.  At that point in time, he started getting better.  It has now been 2 years since the onset.  He just walked a half marathon in December.  He did wear his midweight AFO’s.  But, he walked a total of about 16 miles that evening.

He is skiing every weekend.  Not as good as he did before, but he came home tonight and said, “I skiied great today”

Have faith the other side will come!  Feel free to email me if you want to talk with him.  patty(remove this portion)@nsnw(and this portion).us