Reply To: GBS but not typical onset

January 25, 2013 at 6:42 pm

My diagnosis is also CIDP, after an initial diagnosis of GBS. For me, IvIg was not much help, and it was the in-hospital plasma exchange treatments on which I relied. I’ve often wondered how outpatient plasma exchange differs from inpatient.

Physical therapy directed at recovery of strength is only effective when the progression of the disease has been halted and the nerves are healing. That’s my experience. If you are continuing to lose strength, as evidenced by your need for a walker, PT isn’t going to turn that around. Arresting the progression of the disease is the first priority.