Reply To: First time poster, longtime reader

May 28, 2013 at 5:54 pm

Hi bny806,
Thanks for replying. Yes, I am seeing a specialist at Emory University. Had another EMG and nerve conduction done last week. EMG was bad and the arms (but we knew that) and the back was clear and the legs had a “little bit.” Not definitive for ALS.

Next step is there biopsy in July. The doctor says that the pain I have does not fit ALS, so they are working hard to explore that.

Mentally, this is been a long two-year ordeal. As I’m sure you know it is quite difficult to have that hanging over your head. I am remaining positive and the fact that I can take care of myself although I’m a little slower than I used to be. I also have two young boys that keep me positive as well.

Glad to hear that the IV IG working for you. That is great news!!!
Thanks again for replying.