Reply To: Explaining GBS to others

January 3, 2013 at 7:02 am


Actually, your husband did a pretty good job of it.

I wish the forum had its search function again.  There was a good illustration involving spoons that helped demonstate what it is like to live with an invisible disease.  Ah, I found it.  It is specifically regarding lupus, but it applies to GBS and CIDP as well.  Here is a link to it:

I hope this helps,