Reply To: Explaining GBS to others
January 3, 2013 at 7:02 am
Actually, your husband did a pretty good job of it.
I wish the forum had its search function again. There was a good illustration involving spoons that helped demonstate what it is like to live with an invisible disease. Ah, I found it. It is specifically regarding lupus, but it applies to GBS and CIDP as well. Here is a link to it: http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
I hope this helps,