Reply To: Experiencing Low Protein Levels

I see. It’s true that it takes a while to kick in and awhile to get off it, and there is no way to tell what dosage you need or whether you need it at all except to try it. I was on a 2000 mg/day dose for a couple of years, then it was reduced to 1500. I expect after a year at that dosage to reduce it to 1000. After that, I’m not sure. My neuro says the only way to know if I need it is to stop taking it.

I understand that no one wants to relapse after recovering and being stable for some time. That’s my situation and I certainly don’t to go backward. It’s one of those situations in which the patient has to consider the pros and cons and make a personal choice, but with a large uncertainty factor.