Reply To: Droopy Face!

Hi there- hope you are feeling better and sorry to hear you are still having ups and downs- It took very aggressive IVIG for that pattern to stop for me ( weekly) – to answer your questions about imuran, I was still getting weekly ivig for the first 10-12 months of treatment and my symptoms did slowly improve but also helped stopped pattern of relapses. I did try cellcept but did not tolerate it due to side effects in my case. I don’t stay out of the sun per se, but live in the great lakes region and we don’t get a lot of sun here- when I am in the sun I wear a hat and sunscreen – more for the plaquenil than the imuran. Don’t apologize for your questions- the more you know the better! Take care