Reply To: Daughter with GBS later catogorised to CIDP and new lne of treatment

June 6, 2013 at 11:22 pm

It is not unusual for a diagnosis of GBS to be changed to CIDP, because the initial presentation can be similar. As for CIDP, it is hard to say what is typical, because there is a lot of individual variation.

IvIg is a treatment but not a cure. If a patient responds to it, then it is best if the treatment schedule is adjusted to that which gives the best result. Unfortunately, IvIg is a limited and expensive resource, so there may be economic reasons why it is not administered as often as is best for a particular patient.

There is no one best treatment for all who have CIDP. The treatment must be individualized for best results. I have no experience with Solumedrol, so will leave it to others to comment. I did take Prednisone for a year, and continue to take an immune-suppressant drug.