Reply To: Daughter with GBS later catogorised to CIDP and new lne of treatment

July 30, 2013 at 8:50 pm

Thanks yes this is indeed our new normal and we try to adapt as do her brothers. Madeleine is 9 as well and I hope every time that it wont happen again and every time is does and she start having trouble going up the stairs and starts to see double again. We will see how she does with the 12 days schedule for her ivig and make her life as normal as possible. At this point she is the strong one who told me this morning ” today is not great but by Thursday I can go ride and canter the pony again” so she is strong and take all of this with courage. I am worried now with the school absences as she will be out of school every 12 days for who knows how long. We have already changed her to a private Montessori school but still she has fallen behind so any tip you could give me on how to make sure we succeed with this road block would be helpful.