Reply To: CIDP related swallowing problems – any treatment?

Thanks Dawnת The progress is nothing short of miraculous, and we are tremendously grateful for that.
She has been home, breathing on her own, walking, writing and using her hands freely for over 6 months now, but the swallowing problems seem to leave her doctors still a little blundered.
Dozens of swallowing tests were done, including video fluoroscopy. The doctors think some of the nerves leading to the muscles around the Esophagus may have been damaged, but we have not yet received a clear answer on the functionality damaged and the severity.
She has started working with a speech therapists on practicing eating again (there weren’t any speech issues), with several teaspoons of puree a day, but it is very hard for her and makes her cough quite badly.
If anyone knows of additional treatment methods we would be very interested to hear about their experience.