Reply To: CIDP–new treatments??

September 4, 2012 at 6:13 pm

I have had a lot of success with a programme of diet changes, supplements and other non-medical therapies (after the initial treatment with 6 courses of  IVIG.)

To give you some examples, I take a supplement powder called ‘UltrainflammX’ which my doctor tells me contains a substance that over time (years) will reverse my immune system out of autoimmune mode; I adhere to many of the diet and supplements recommended for people with MS as outlined here: – not that what we have is MS but there are some similarities and we can benefit form what they have learned; lastly I have recently been reading up about a Chinese herb called Chang Shan which has been found to reduce the abnormal activity of TH17 immune cells in autoimmune conditions – I am considering trying this out.

I really encourage everyone to try diet and supplements to treat the root problem. There is a huge volume of growing evidence for the impact of diet on inflammatory and autoimmune conditions but doctors don’t generally know about it or talk about it and others will disagree with it (because it is not in their frame of training and expertise). Meditation and prayer have also been an essential part of my recovery.

After the first 6 month period and the 4-6 months recovery that followed, I have had just 2 small ‘episodes’ of symptoms of weakness, and that is with a very busy job and life in general.

I hope you find the treatment that works for you.