Reply To: CIDP – Active Infection

Hi,
First of all, is it possible for you to post this on the main forum as well? I think it is very interesting and would hate for people to miss it! Second, you mention other ways to get the bartonella, what about wasps? bees? While in South Dakota we were stung by several bees or what ever is indigeonous to that area and soon after started the cidp symptoms. Curiously, what type of antibiotics? The typical lymes iv protocol? We were on a 3 month regimen for sinus infection, wondering if it would help with the bee issue if it was bartonella? I have always felt that some sort of trigger causes the response, your spider issue, our bee issue campy, whatever it may be. I even think leaky gut. We have been better than ever 5 years out, ivig reduced from 2 to 1g/kg attempting a wean soon. Is it because we had this bartonella and the sinus antibiotics helped, is it because after many pro/pre biotics we have fixed the leaky gut? Is it because puberty has rebooted the immune system? Is it because of ivig maybe working as more than just a regulator of t-cells and maybe encouraging or teaching the immune system to prperly produce t-cell regulators? I have no idea. But I am so happy that you have found a critical piece to the puzzle for your son. Remove the trigger= proper immune response again! Awesome news. Please post info of web site when you get it up! Thanks