Reply To: Anyone experience "Freezing Episodes?"

Not to get into an argument, I was not wise to use “idiotic”, but cellcept is a second line if first line IVIG does not work.  If I read the question correctly the treatment was 4 week intervals and when that only worked for 3 weeks instead of moving to 3 week intervals it was changed to 6 weeks.  Then when that didn’t work the plan was to go to level two CellCept, which reduces the bodies immune system.  It seems to me that it may not be “idiotic” (I apologize for using it) but it does seem unreal to not reduce to 3 weeks.  I spent 8 years on 3 weeks and got along really fine. (Am now on 4 weeks and doing great).  I was put on a immune reducing medication and the result was 4 weeks in the ICU with an infection.  The docs all said I would have been ok if not on the immune reducing medication.   Also note that if you become pregnant they want you off CellCept as it affects the fetus.  From the CellCept site: Using CellCept can make it easier for you to bleed from an injury or get sick from being around others who are ill. You may also have an increased risk of cancer. Your blood will need to be tested on a weekly or monthly basis while using this medication. Do not miss any scheduled appointments.

Why not just simply go from 4 weeks to 3 weeks.