Reply To: An update from emitch74…

March 12, 2012 at 11:58 am

Thanks for the reply it does help! I was lucky that when I was initially diagnosed and hospitalized with CIDP ( initially thought to be GBS) that I was in good shape , muscular and a good weight- the neurologists repeatedly told me that If I were heavy or out of shape my recovery would have been much harder which makes me even more in awe of your accomplishment. I do think that I struggle with knowing what is residuals vs active disease symptoms – I have noticed that when I am more active I initially feel worse but if I am consistent for a few days I actually start to get stronger and feel better so I think I may just need to push through that – I have trained for endurance events but I swear that CIDP is the hardest endurance event I have ever experienced ! Thanks again for sharing your story