Reply To: 3rd IVIG not as effective?/relapse?
THank you so much Kelly!! I think you must be right about that as far as the first IVIG having the most improvement to be made- my hubby says the same thing! 🙂 My dr today at my follow up also said that when I get a virus it can really set me back too, or make that round of IVIG less effective… I still notice improvement from the last IVIG (not much from the most recent)…. but things like holding my kids for any amount of time, which i could do SOOO easily after that last IVIG, I just can’t do right now (and i’m 14 days s/p this last IVIG) 🙁 hips and shoulders are pretty weak again too. Other things like my overall energy and especially my dexterity are amazingly better, if not completely back to my old hands! 🙂
I had my follow up appointment today, and my dr wants to increase my dosage from 30g to 48g (i weigh 130).. We talked about repeating the dose more frequently if needed after this next dose (i have cleared my schedule for my next dose to be next tuesday and unfortunately can’t budge that any sooner).. My dr agreed no immunosuppresants/steroids at this time… phew! Now I just pray this next round I’ll notice some decent improvement!!!