July 5, 2008 at 12:26 am

If you respond like you seem to to IVIG, then you would be relapsing/remitting type of CIDP. The majority of people with progressive CIDP usually have symptoms come on much slower (over the course of years for some), & also do not respond very well to IVIG or PE. The fact that you have done fairly well on IVIG for 8 years now points toward the previous type.

I have come to believe after 6 years of severe CIDP that stress plays a large part in how we feel, especially pain. You do have some huge stressors going on right now, so I bet that is why you didn’t respond as well. Also, rest, getting enough sleep plays a large part in how we feel. For me everything is amplified if I don’t get at least 10-12 hours of sleep per day. I try to get it all at night, as I hate taking naps. But when I hit the “brick wall” during the day, I have no choice but to nap.