I posted a reply to a person earlier today who had a reaction to IVIG. Here is my post:

“After 11 months of IVIG—100 Grams Gamunex in 5 hours every 4 weeks, I noticed that others were receiving smaller bags of fluid prior to the Gamunex. I had been plagued with the aching, itching, and migraine headaches after each treatment even though I was given Tylenol and Benadryl prior to each treatment. I was told that the small bags were Reglan (for stomach) and Decadron (type of cortisone to help with symptoms). I asked the Dr. about it and he put me on these two IVs prior to the Gamunex. After the first treatment using this new regimen I thought it was a miracle because I did not have a headache. The next treatment was also okay. However, after the third treatment with the new regimen I was fine the next day, but later that night I woke up having problems breathing, itching all over, and aching all over. I got up and took a benadryl and used my asthma inhaler. When I got up the next morning I was so sick and swollen all over that I went directly to my family doctor. My blood pressure was 180/88 and white cell count was elevated. I got two injections of Lasix (for fluid retention), a pill under my tongue (vasodilator for the BP), and a prescription for antibiotics. I had a horrible weekend—aching all over sometime unbearable pain and also got the migraine. On Monday morning I went back to my local doctor and was given a prescription for muscle relaxant and also Neurotin. I tried the muscle relaxant and it did not do anything, so I tried the Neurotin and it helped stop the pain and itching. I notified my Neuroligist of the reaction to the IVIG and he mentioned possible pre-treating me with Lasix, too.

I think that I got a bad batch of Gamunex. Have any of you had something like this happen to you???”

Now I am wondering about the lot number of the Gamunex!!! How many others have had reactions lately??? Since it is made from blood plasma I wonder about the contamination factor???

Edit/Delete Message

After 11 months of IVIG—100 Grams Gamunex in 5 hours every 4 weeks, I noticed that others were receiving smaller bags of fluid prior to the Gamunex. I had been plagued with the aching, itching, and migraine headaches after each treatment even though I was given Tylenol and Benadryl prior to each treatment. I was told that the small bags were Reglan (for stomach) and Decadron (type of cortisone to help with symptoms). I asked the Dr. about it and he put me on these two IVs prior to the Gamunex. After the first treatment using this new regimen I thought it was a miracle because I did not have a headache. The next treatment was also okay. However, after the third treatment with the new regimen I was fine the next day, but later that night I woke up having problems breathing, itching all over, and aching all over. I got up and took a benadryl and used my asthma inhaler. When I got up the next morning I was so sick and swollen all over that I went directly to my family doctor. My blood pressure was 180/88 and white cell count was elevated. I got two injections of Lasix (for fluid retention), a pill under my tongue (vasodilator for the BP), and a prescription for antibiotics. I had a horrible weekend—aching all over sometime unbearable pain and also got the migraine. On Monday morning I went back to my local doctor and was given a prescription for muscle relaxant and also Neurotin. I tried the muscle relaxant and it did not do anything, so I tried the Neurotin and it helped stop the pain and itching. I notified my Neuroligist of the reaction to the IVIG and he mentioned possible pre-treating me with Lasix, too.

I think that I got a bad batch of Gamunex. Have any of you had something like this happen to you???