RE: Passing Out
Hi Dave, welcome to the site! I too am a relatively new member of this forum.
I’ve had CIDP for the past 10 years and have NEVER passed out due to my neurological condition, so I strongly doubt that your CIDP is the root cause.
Nor would I tend to suspect that it’s your I.V.I.G., but since it’s a blood byproduct one can never be absolutely certain. I know that I.V.I.G. has been a [U][I]HUGE[/I][/U] [U][I]BLESSING[/I][/U] for me. That’s not to say that it doesn’t affect people in ways that it doesn’t affect others. There’s a long list of warnings & contra-indications associated with I.V.I.G., so you probably should discuss your entire medical profile at length with your neuro if you haven’t already done so.
Now, I do strongly agree with LindaH that your other meds might be causing a sudden drop in your blood pressure. (Are you still driving?) And her suggestion to make sure you’re eating a healthy, balanced diet is certainly sound advice. Also, and this is VERY IMPORTANT… listen to your body when your CIDP causes you to become fatigued. GET MAXIMUM REST! With CIDP, you have to PACE YOURSELF! Ask your doc for a sleeping aid if you need it. Always remember, your body can only repair itself while you’re sound asleep.
It certainly isn’t fun having CIDP, in fact, it’s a fairly rotten deal. But it can be managed. No one deserves having this condition, but you just have to play the hand that you’re dealt in life. What other choice is there?
On a personal note… When I get down about having this lousy condition, I try to remember that there are many, many others out there who have the disease I was first diagnosed with; ALS. I’m certain they would ABSOLUTELY LOVE having a condition as manageable as CIDP. ALS is otherwise known as Lou Gehrig’s Disease, and typical life expectancy is only 2 to 5 years. A slow, agonizing death typically results from suffocation. (Stephen Hawking is the RAREST of exceptions, having survived as long as he has).
So you see, as bad as it is… and it is bad, but it could be much worst. I’ll be praying for you and all the others on this forum who have this dreadful condition. I pray that a real cure will be found soon, but MUCH MORE research is badly needed! Since CIDP is so rare, it’s just not considered a priority for researchers.
In conclusion, try to keep your chin up, and remember to keep paying it forward!
Kevin (a.k.a. KHS730)