re my son has CIDP at 5 years of age

November 1, 2006 at 9:08 am

I can certainly sympathize with you about having a sick child. I have an 8 year old who has been sick for about a year and a half, we almost lost him. Read some of my other posts. He is yet to be diagnosed with anything as of yet. Test after test and nothing conclusive. they are presuming it may be mitochondrial because there was one test on his muscle that showed some chemical makeup that was so slight but could possibly be mito. One doctor and I say CIDP for many reasons but I am told that even though he had an EMG his nerve concution was zero at one time that it is how the nerve is blocked that says not CIDP and that he has also had nerve damage that causes him to be deaf??? In my research I have found many disease have very similar symptoms and if just one is different the docs say it can’t be that. I wish you luck and keep researching and getting answers. this website has helped me allot and everyone is very knowledgeable and supportive.

Colleen;) 😉