I was getting my IVIG on Tuesday. Due to many “air” alarms it took longer than usual.
My nurse had to go off shift so I was left in the hands of another ward.
I get my infusions in the oncology ward which is kept apart from the rest of the hospital to try to avoid lots of people coming in cause most cancer patients that are getting chemo have a low imune system.
Anyhow the nurse that came to look after me said she usually felt guilty coming into this ward after being on the floor with the other sick people
when cancer patients are in the room BUT she felt OK coming into look after me cause I was so healthy!!!!!
As you can imagine I was not happy about this comment and asked her if I was so healthy why did she think I was getting IVIG in this ward!
She had never heard of CIDP and has no idea how sick I really am.
I tried not to make her feel real bad but tried to get her to understand just cause someone looks healthy doesn’t mean a thing. You should have seen her face when I asked for help to get up to use the washroom and needed assistance walking cause I was in so much pain.
Hopefully she will take this experience and learn and grow from it and she can pass on her new knowledge about CIDP with fellow nurses.
Rhonda from Canada