Quick DX and recovery is ongoing (a little long)

June 23, 2006 at 3:21 pm

I am new to the forums. It is quite helpful to read the information and know that I am not still imaging my symptons. I was dx with Miller-Fisher variant of GBS in March 2006. I got a quick diagnosis thankfully due to my GP telling the ER doc, “She needs to see a neurologist”. That was a Wednesday. Wonder of wonders, I was able to see a Neurologist the next day, Thursday. Within 5 minutes of time with her, she says I think you have GBS. I had heard of this once, but really didn’t know what it was. She told me to go immediately back to an ER, but not the one I was at the day before 🙂 , but go to a teaching hospital. She provided me with a letter to present to the ER basically stating rule out GBS or Meningitis. After another 12 hours in the ER, meeting the attending neurologist and many many residents, and getting the lovely spinal tap, I was admitted and placed in the acute stroke unit so I would have close monitoring. At this point, I was so tired and bewildered. I did not have a real clue as to what was going on . My symptoms as this point beyond the extreme fatigue, was my left arm was almost fully paralyzed. Right arm numbing up, feet starting to numb up, left eye lid drooping to almost being closed, double vision, and tightness in the chest. So Friday night I recieved my first IVig treatment and then for the next 4 nights. The progression pretty much stopped. I left the hospital on the 6th day of my stay. It wasn’t until a week later when I was able to do some searching on the internet that I realized how VERY LUCKY I was to get such a quick dx and IVIg treatment. Granted I left the hospital with sever double vision, which last for another month, and my arm still wasn’t right – but I could walk, talk and did not have to be put on a vent. I was at home and I went back to work a week later. I still have symptoms, strange pain, numbness, tingling fatigue that seems to be sudden onset some days. I sometimes go – why am I so tired. Then I remember GBS It interferes some, but I try not to let it.