May 15, 2008 at 1:15 am

Hi Dean

I used pulse prednisone for about 9 months. I used it for 3 days every fortnight (2 weekly) at 500mg a day. I hated it. It gave me a migraine like headache, stomach problems, and weight gain – for no apparent benefit in my case.

I know that Gareth Parry who is a medical advisor on this board and who specialises in this sort of problem recommends it as his baseline treatment for CIDP now.

But like everything else, each person reacts differently. I was still taking pain meds at the same time because I have a very painful neuropathy.

The idea behind the pulse treatment is that it is supposed to reduce side effects of taking it every day. All I can say — if you think it might do you good – try it – but know what you are getting into.

Kind regards and good luck