December 9, 2007 at 11:53 pm

I know I have posted about this before, but I believe that I am one of the few on this forum to have had 21 months of weekly & twice weekly solumedrol infusions. I needed them at the time, it was either the steroids, or a nursing home. Yes, I was that bad, without them I had almost no use of my hands, could not transfer in & out of a wheelchair, actually could not even sit up in one, nor in a bed. So, at that time I know I needed them.

Having said that, I have been off of them since Feb of 2004 (my CIDP was arrested by chemo in 2003.) I am still dealing with the after affects of steroids. I had cataract surgery in both eyes in the fall of 2004, I gained 80# in those 21 months, my bones are terrible (no one told me to take an extra calcium), I still have scarring all over from a rash they caused, etc… I wish everyone could do well on IVIG & try to avoid any long term steroid use.