Positive Thoughts …
Crystal … the one thing that I know for certain is that positive thinking and thoughts are your uncle’s BEST therapy right now. I know that what he is experiencing and what your family is witnessing is terrifying but you MUST constantly remind him and talk to him about the fact that he will get better, he will get past whatever stage he is in at the moment. It may get worse, I’m not going to lie, but don’t dwell on that. My motto the entire time I was in ICU, “Stay on top of the bubble!” You cannot change the course of the syndrome but you must believe and know and hold on to the knowledge that he will get better in time. There is a light at the end of the tunnel … just keep staying positive and holding on to that realization. My prayers are with your uncle and your entire family. Be positive, think positive, and always stay on top of the bubble!!
Don’t hope for things that may not happen in the time frame that you want them to. Take each day at a time and just stay positive in the moment. There is really no ease for the pain and discomfort. That is part and parcel of the syndrome. They can give some meds, possibly, to help but my condition was so weakened that I couldn’t keep any pain meds down so just had to tough it out. It will be okay, though … we are never given more than we can handle, right?
I’ll be watching for further updates … Profer