June 5, 2008 at 3:25 pm

Hello! I have to say I have managed to drive my self officially crazy. I do not have GBS or CIDP but I suffer from another autoimmune disease called MG – Myasthenia Gravis. I have been diagnosed with this now for over a year and have been getting IVIG treatments sense January 08. Since then every month has become more painful. So, my neuro doctor has decided to put me on a port. Though I have heard nothing but wonderful things about this, my stomach is in knots over this. I meet with my surgeon this afternoon for my consult. I do not even have the slightest clue as to what I am getting myself into. (I have done some research but not enough) I am afraid of so many things. I am hoping maybe someone can put my questions to ease.
SO, for anyone that has a portacath – does it always stick out a lot? Can it be seen easily? Does your bra straps effect it? Can you choose the size of your port or what side it is put in? How long are you sore for? Can you swim and bath normally? How soon afterwards can you resume normal activities? I know this might seem crazy but these are flooding my mind.Thanks so much everyone ahead of time. Dena