Eric,
Forgot to ask. If the IVIG is not working has your doc suggested plasma exchange? IVIG did not help me initially so they switched to PE with IV Predinsone at the end of the procedure and this has kept me going for 12 years. The PE is also done without the steriods with good results in many cases and there is minimal risk, if any, with PE’s. If your veins are good they can do them without a port. They can even use an angio cath in the wrist for the return line. Something to consider if your doc hasn’t already suggested it. I’ve had nearly 400 PE’s in the past 12 years, so they must be pretty safe!
Fred

Eric,
Many on this site have been on cellcept without problems. I have taken it for over 4 years without problems. Its a risk reward assessment for many of these medications as most list some pretty heavy side effects. Steriods have lots of bad potentials as does cytoxin and rituxan. I decided to try Tysabri, an MS drug that the FDA took off the market because of PML deaths reported. Its back on the approved list, but as other treatements have lost their effectiveness, I decide, for me, the risk is worth the potential reward. Do your research, weigh the potential gains against the risk, then decide what is best for you. Good luck in your journey.
Fred