August 9, 2011 at 10:06 pm

Hi Homeagain,
thank you so much for what you have written, I write everything down and her last infusion was by far the fastest drip… I will insist on a slower one I take everything down. weight, BP every 30 min, drip, if htey miss a bump up… everything, they are going to give her an IV of Fluids (forget which ones) to hydrate her b4 infusion on day 1… As for not going. She has confided in me that she did not want to ruin my vacation… go figure a 17 almost 18 year old wanting to delay so that I could go on vacation, nothing elaborate just a week in a loaned house out in the woods… she more than happy to get up at 6:30 on thursday and make the drive into the city… “I wish thursday woudl hurry up already”…We are talking and weighing all her options., She is looking into stem cell…. She is a freshman in college and is hopeful that she can keep her treatment schedule under wraps so no one knows she is sick… she has a whole plan on how to make this work for her…. She is going into medicine… Wants to make a difference in someones life like her MD did for her… go figure. I just feel so helpless sometimes and wonder if I am doing everything I can for her… I am ready to sell everything I own and quit my job to get her anything she needs. she is too young for this… I could write in here for hours, but will not… I am sure you have heard it all before….. I just feel so helpless. Thank you all for listening….